Non Profit Organizations
The Alström Angels Mission:
Alström Angels is a non-profit charity dedicated to raising funds for Alström Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.
As their mission gained momentum, Lynn and Cassie realized they had an opportunity to help other children diagnosed with the individual aspects of Alström Syndrome, and help other families dealing with the difficulties of a rare disease. This grew into a secondary mission to benefit the children and communities of West Texas.
Community Transformation Mission:
Through the efforts and fulfillment of the Alström Angels mission, we strive to bring awareness to the individual illnesses and disabilities associated with Alström Syndrome that affect other children in our local community.
Alström Angels was formed in March of 2012 by Lynn and Cassie Johnston. It was then that their 3-year old daughter, Bryce, was diagnosed with Alström Syndrome; one of the rarest and most devastating diseases in the world.
Through their shock and profound sadness from the diagnosis, Lynn and Cassie made a decision to do something positive for Bryce that would outshine her crushing new reality. This decision was the beginning of Alström Angels.
Their initial intent was three-fold: bring more awareness to Alström Syndrome so children could be diagnosed earlier, raise funds so more medical research could be conducted, and better family support for Alström families around the world.
Javier D. Martinez
- Phone: (469) 608-9650